Comprehensive Turner Syndrome Research Study at Stanford University

Girls (ages 3-12) with Turner Syndrome are invited to participate in a NIH-funded research study designed to increase our understanding of learning, behavior, genetics and brain development.

• Comprehensive neuropsychological evaluation
• Blood or saliva test (for genetic analysis)
• Structural and functional MRI scan (to examine brain development and function)

• Written report providing results of neuropsychological evaluation
• Opportunity to participate in one year follow-up to track developmental progression
• Opportunity to participate in new treatment research studies designed to improve cognition and learning in girls with Turner syndrome (see below)
• Access to ongoing updates about the outcomes of the study
• $150 honorarium for participation

Local and long-distance travel arrangements will be made by Stanford research staff so there will be no travel or lodging costs to families for participation.

Comprehensive: Longitudinal Study

Girls with Turner syndrome who participate in the comprehensive study will be asked to return to Stanford for a one-year follow-up visit.

• First study of its’ kind!
• Comprehensive neuropsychological evaluation
• Structural and functional MRI scan (to examine brain development and function)
• $150 honorarium for participation

Imaging Intervention Study

Girls with Turner syndrome who live within driving distance of Stanford University also can participate in a new research study designed to enhance the participant’s ability to control brain activity underlying learning. For more information click here.

For further information regarding questions, concerns, or complaints about research, research related injury, and questions about the rights of research participants, please call (650) 723-5244 or call toll free 1-866-680-2906 or write the Administrative Panel on Human Subjects in Medical Research, Administrative Panels Office, Stanford University, Stanford, CA 94305-5401.